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Die Objektivierung des Menschen

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Erwin-Schrödinger-Saal
Plenary / Keynote & Discussion
in englischer Sprache

Riesige Datenmengen geben Aufschlüsse über unser Verhalten. Genetische Codes entschlüsseln die biologischen Determinanten des Lebens. Die Hirnforschung stellt funktionelle Abläufe des Denkens dar. Wie können wir mit diesen umfassenden Informationen verantwortungsvoll und ethisch vertretbar umgehen, ohne das Potenzial der Möglichkeiten einzuschränken?

Vortragende

Head, Department of Human Genetics, Radboud University Nijmegen Medical Centre, Nijmegen; Head, Department of Clinical Genetics MUMC+, Maastricht Abstract
Personal genome sequencing has rapidly evolved from being something unusual and expensive to being a commodity that is widely available for a few thousand Euros.So how are we to use this powerful technology? Will knowing our genes change our sense of self? Can we predict various personality traits and what does that mean for society? Should we predict diseases that have not yet struck, and should we make a genetic diagnosis just to know when a cure is not available?
Head, Department of Clinical Neurosciences and Co-Director, Human Brain Project, Centre Hospitalier Universitaire Vaudois, Université de Lausanne Abstract
The Human Brain Project is a massive collaborative effort, funded by the European Union, between basic and clinical neuroscientists and computer engineers. We aim to develop a working theory of the brain from the most basic level  its genes, to the most complicated  cognition, emotion, perception and action. Using data collected over decades, we will employ supercomputers to generate a blueprint of how the brain works. Neurologists and psychiatrists will use this model to develop new diagnoses based on faulty brain mechanisms leading to an era of precision medicine. This project will drive major advances in medicine under European leadership in the next decade.
Professor of Computational Biology and Bioinformatics, Department of Biostatistics, Harvard School of Public Health, Cambridge, MA Abstract
How do we balance protecting patient privacy with the need to store and access massive quantities of (fundamentally identifiable) data? How do we assure fair use of the appropriate data while addressing data ownership issues? How do we construct informed consents to enable research? How do we identify key user groups, define their potential use cases, and assure they have appropriate access to data? How do we distill information to provide appropriate information, in context, at the point of care? How do we navigate data security, cloud systems, and appropriate access in ways that are enabling rather than limiting? How do we scale as more and more quantitative data become available? What investments do we need to make in Big Data research to enable biomedical research and improve health care?
EU Health Policy Expert, Nick Fahy Consulting Ltd., Oxford Chair

Ph.D. Han BRUNNER

Head, Department of Human Genetics, Radboud University Nijmegen Medical Centre, Nijmegen; Head, Department of Clinical Genetics MUMC+, Maastricht

1988 Staff member, Department of Human Genetics (Section Clinical Genetics), Nijmegen Medical Centre, Radboud University
1993 Ph.D. Thesis (title: Genetic Studies in Myotonic Dystrophy)
1998 Appointed as Full Professor of Human Genetics and Head of the Department of Human Genetics at Radboud University Nijmegen Medical Centre

Richard FRACKOWIAK

Head, Department of Clinical Neurosciences and Co-Director, Human Brain Project, Centre Hospitalier Universitaire Vaudois, Université de Lausanne

2005-2009 Directeur, DEC - Departement des sciences cognitives, Ecole Normale Superieure, Paris
2002-2009 Vice-Provost, UCL - University College London
1998-2002 Dean & Director, UCL Institute of Neurology, Queen Square, London
1994-2009 Foundation Professor of Cognitive Neurology, University College London

John QUACKENBUSH

Professor of Computational Biology and Bioinformatics, Department of Biostatistics, Harvard School of Public Health, Cambridge, MA

1994-1997 Staff Scientist, Stanford Human Genome Center, Palo Alto, CA
1997-2005 Investigator, The Institute for Genomic Research, Rockville, MD
since 2005 Professor, Harvard School of Public Health, Boston, MA
since 2005 Professor, Dana-Farber Cancer Institute, Boston, MA
since 2011 Founder and CEO, GenoSpace LLC, Cambridge, MA
since 2013 Professor, Brigham and Women's Hospital,Boston, MA

BA B.Sc. Nick FAHY

EU Health Policy Expert, Nick Fahy Consulting Ltd., Oxford

1994-1996 European fast stream administrator, Department of Health, London
1996-1997 Ministerial Private Secretary, Department of Health, London
1998-2000 Detached National Expert on Social Protection and Social Inclusion, European Commission, Brussels
2000-2002 Consumer Protection Administrator, European Commission, Brussels
2002-2007 Deputy Head of the Health Strategy Unit/Health Taskforce, European Commission, Brussels
2007-2010 Head of the Health Information Unit, European Commission, Luxembourg
since 2010 Independent Consultant

Gesundheitsgespräche

Timetable einblenden

17.08.2014

20:00 - 23:00EmpfangSocial

18.08.2014

09:00 - 09:15BegrüßungPlenary
09:15 - 12:00Die Objektivierung des MenschenPlenary
12:00 - 12:15Einführung in die Breakout SessionsPlenary
13:00 - 14:00Diskussion: Die Objektivierung des MenschenPlenary
13:45 - 14:00Elf Zukunftsfragen für das österreichische GesundheitssystemBreakout
14:00 - 16:00Breakout Session 01: Big Data als Chance für ein bürgerorientiertes Gesundheitssystem 2025?Breakout
14:00 - 16:00Breakout Session 02: Big Data - Selbstbestimmtes Gesundheitsverhalten des Einzelnen oder geschickte Manipulation?Breakout
14:00 - 16:00Breakout Session 03: Bremst der Datenschutz die Weiterentwicklung unseres Gesundheitssystems?Breakout
14:00 - 16:00Breakout Session 04: Prädiktive Genetik - Das Recht auf Wissen oder Nichtwissen?Breakout
14:00 - 16:00Breakout Session 05: Die Gene sind ungerecht - Wer trägt die Konsequenzen?Breakout
14:00 - 16:00Breakout Session 06: Das individuelle Erbgut - Schicksal, Chance oder Verpflichtung?Breakout
14:00 - 16:00Breakout Session 07: Doping fürs Gehirn - Individuelle Freiheit oder gesellschaftliche Verantwortung?Breakout
14:00 - 16:00Breakout Session 08: Erkenntnisse der Hirnforschung - Segen oder Fluch?Breakout
14:00 - 16:00Breakout Session 09: Neurowissenschaften und Hirnforschung - Wie gehen wir mit den neuen Informationen um?Breakout
14:00 - 16:00Breakout Session 10: Gesundheitsförderung ist einfach, aber nicht leicht! Was konkret sollte sie zur Bevölkerungsgesundheit 2025 beitragen?Breakout
14:00 - 16:00Breakout Session 11: "Reorienting Health Services" - Von der Kuration zur PräventionBreakout
16:30 - 17:15Zusammenführung und Auswertung der ZukunftsbilderBreakout
18:00 - 21:00Fest am BergSocial
21:30 - 22:30Theatre Performance. Free AssociationCulture

19.08.2014

04:30 - 08:00Sonnenaufgangswanderung mit Peter Habeler auf den GratlspitzSocial
09:00 - 10:45Zukunftsbilder für das österreichische Gesundheitssystem 2025Plenary
11:15 - 13:00Eine modernere Kommunikation in der medizinischen GrundversorgungPlenary
13:15 - 14:45Gesundheitstalk - Ernährung 2.0Social
15:30 - 17:00Partner Session 01: Eigenverantwortung stärken - Gesundheit sichernPartner
15:30 - 17:00Partner Session 02: Tirol ist gesünder. Aber warum?Partner
15:30 - 17:00Partner Session 03: Wie viel evidenzbasierte Medizin verträgt das Gesundheitssystem? - Beispiel ÖsterreichPartner
15:30 - 19:00Partner Session 04: Hygienemanagement im Gesundheitsbereich - Innovation durch Chemikalienleasing?Partner
17:30 - 19:00Partner Session 05: Grenzüberschreitende Gesundheitsversorgung in der Praxis - Patientenrechte in der EUPartner
19:00 - 20:30Wiener Vorlesungen: "Klüger, besser, schöner... - Ist der Mensch optimierbar?"Culture